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People with rare genetic conditions are ‘systematically ignored’ by NHS

Exclusive: One in four wait at least three years for diagnosis and many face treatment ‘access lottery’, report finds

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the Guardian (www.theguardian.com)
]]>https://isurg.org/topic/c4ad400c-4e35-4c4b-8561-5f87782b7da5/people-with-rare-genetic-conditions-are-systematically-ignored-by-nhsRSS for NodeThu, 16 Apr 2026 05:26:27 GMTSat, 14 Mar 2026 18:04:24 GMT60<![CDATA[Reply to People with rare genetic conditions are ‘systematically ignored’ by NHS on Sat, 14 Mar 2026 21:31:06 GMT]]>Which genetic testing are you talking about specifically?

]]>https://isurg.org/post/https://lemmy.world/comment/22664802https://isurg.org/post/https://lemmy.world/comment/22664802Sat, 14 Mar 2026 21:31:06 GMT<![CDATA[Reply to People with rare genetic conditions are ‘systematically ignored’ by NHS on Sat, 14 Mar 2026 18:53:17 GMT]]>IF you may have a rare genetic-condition, & want some leverage in getting the medical-industry to take you seriously,

THEN please consider whether getting 1000x-oversampling genetic-testing ( which is the level that will nail those items with reasonable-certainty ) done.

100x isn't good-enough, from what I've read.

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]]>https://isurg.org/post/https://lemmy.world/comment/22662692https://isurg.org/post/https://lemmy.world/comment/22662692Sat, 14 Mar 2026 18:53:17 GMT